Clinical Trials Units that have prospectively expressed interest in this call
| Name of Clinical Trials Unit | Location (England, Northern Ireland, Scotland, Wales) | NIHR funded (Yes/No) | Contact details (generic email address or named contact) |
|---|---|---|---|
| Centre for Trials Research, Cardiff University | Wales | No | Professor Richard Adams, Director of Cancer Trials richard.adams@wales.nhs.uk or Professor Kerry Hood, Director of CTR hoodk1@cf.ac.uk |
| Peninsula Clinical Trials Unit | England | Yes | penctu@plymouth.ac.uk |
| PRIMENT Clinical Trials Unit at University College London | England | Yes | Jess Nye priment@ucl.ac.uk |
| York Trials Unit | England | Yes | Sally Baker Sally.baker@york.ac.uk |
| Southampton Clinical Trials Unit | England | Yes | ctu@soton.ac.uk |
| CTRU, University of Leeds | England | Yes | m.collinson@leeds.ac.uk |
| Brighton and Sussex Clinical Trials Unit | England | No | Nicky Perry, Director, bsctu@bsms.ac.uk |
| Lancashire Clinical Trials Unit | England | No | lancashirectu@uclan.ac.uk |
| Hull Health Trials Unit | England | No | Judith Cohen, Director HHTU, judith.cohen@hyms.ac.uk |
| Exeter Clinical Trials Unit | England | No | CTU@exeter.ac.uk |
| Edinburgh Clinical Trials Unit | Scotland | No | ECTU-new.proposals@ed.ac.uk or Joyce Thomson joyce.thomson@ed.ac.uk |
| Nightingale-Saunders Clinical Trials and Epidemiology Unit (NSU) – specialist section of King’s Clinical Trials Unit (KCTU) | England | Yes | nightingale-saunders-kctu@kcl.ac.uk |
Research following need
Please note that the data displayed below are provided purely to illustrate the NIHR research taking place in comparison to the prevalence of palliative and end of life care need. Data has been obtained in raw form and NIHR has not applied any additional data analysis. Given that currently equivalent data from across the UK is not included within a single tool, the data has been derived from different sources from across the UK based on areas of direct responsibility. However, NIHR is keen to ensure that research is conducted in the areas where health needs are greatest across the UK and therefore, applicants from across the UK will be expected to justify their choice of recruitment sites.
England
The image above shows information relating to both palliative and end of life care prevalence per 1,000 population and research recruitment rates per 1,000 cases in NIHR CRN local network areas in England between financial year 2014/2015 and financial year 2019/2020. The data is ordered by prevalence (high to low) and also displays and all England average figure. Applicants should prioritise involving areas with above average prevalence and below average recruitment to meet the objectives of the brief.
Data are available at a CCG level which provide further information about the prevalence/recruitment breakdown, for example there are 28 CCGs with zero recruitment over the data period, 13 of which have above average prevalence levels. The full breakdown of NIHR CRN-supported palliative and end of life care/support research activity and prevalence for all 139 CCGs in England can be obtained by emailing a request to: crossprogramme@nihr.ac.uk
You can find the information displayed in the above image listed in a table.
Scotland
The image above shows information relating to the number of palliative and end of life care research studies in Health Boards in Scotland active in the last five years, ordered by number of studies (low to high) and also displays an average number of studies per region figure. Applicants should prioritise involving areas with below average numbers of studies where there are high levels of care need to meet the objectives of the brief.
The number of studies per health board in Scotland are (as seen in image above): NHS Ayrshire and Arran = 1, NHS Borders = 1, NHS Dumfries and Galloway = 2, NHS Fife = 2, NHS Tayside = 3, NHS Forth Valley = 5, NHS Grampian = 5, NHS Highland = 5, NHS Lanarkshire = 6, NHS Lothian = 12, NHS Greater Glasgow = 22. All Scotland average per region = 5.8.
Wales
The image above shows information relating to the number of participants recruited to palliative and end of life care research studies in Health Boards in Wales between 2015/16 and 2020/21, ordered by number of participants (low to high) and also displays an average number of participants figure. Applicants should prioritise involving areas with below average recruitment and high levels of care need to meet the objectives of the brief.
The number of current research participants in relevant studies in Wales are (as seen in image above): Powys Teaching HB = 39, Hywel Dda UHB = 119, Cwm Taf Morgannwg UHB = 145, Aneurin Bevan UHB = 159, Swansea Bay UHB = 196, Cardiiff & Vale UHB = 350, Betsi Cadwaladr UHB = 403, Velindre NHS Trust = 429. Wales average region = 263.
Northern Ireland
The image above shows information relating to the average number of palliative care patients on clinical registers per Local Commissioning Group in Northern Ireland between 2015 and 2020, ordered by average number of patients (low to high) and also displays an overall average figure. Applicants should prioritise involving areas with above average numbers of palliative care patients and low levels of research activity to meet the objectives of the brief.
The number of palliative care patients on clinical register per Local Commissioning Group in Northern Ireland between 2015 and 2020 are (as seen in image above): Southern = 810 Western = 818, South Eastern = 1037, Belfast = 1202, Northern = 1325. Northern Ireland commissioning group average = 1038.
To see the commissioning brief and other supporting information for this call or to apply, see the call post.