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NIHR Patient and Public Involvement Senior Leadership Team Strategic Priorities 2018-19

 

Contents

The NIHR Patient and Public involvement (PPI) Senior Leadership Team (SLT) has identified and agreed five priorities for its work to advance and promote patient and public involvement and engagement in the NIHR in 2018-2019. These build on the ‘Going the Extra Mile’ strategy and are as follows:

  • Standards: To define what good public involvement and engagement looks like
  • Impact / Getting Results: To understand and show the value of public involvement and engagement
  • Invention: To test new ideas in public involvement and engagement and share the learning
  • Voice: To ensure patients, carers and the public have a voice in how the NIHR works
  • Feedback: To ensure patients, carers and the public get feedback on how they have made a difference.

What does the work look like? How will we look to deliver on these priorities?

The table below outlines the PPI SLT’s approach to taking this work forward using the 4Rs, the suggested ‘measures’ of success for public involvement and engagement as first proposed in ‘Going the Extra Mile’. These are:

  • Reach: the extent to which people and communities are engaged, participating and involved in NIHR research including the diversity of this population
  • Relevance: the extent to which public priorities for research are reflected in NIHR funding and activities
  • Refinement and improvement: how public involvement is adding value to research excellence as funded by the NIHR.
  • Relationships – partnerships and collaborations in keeping with our values that build the best environment in which public involvement and engagement can thrive.
  Strategic prioritiesStandards Impact/getting results InventionVoiceFeedback
To define what good public involvement and engagement looks like To understand and show the value of public involvement and engagement To test new ideas in public involvement and engagement and share the learning  To ensure patients, carers and the public have a voice in how the NIHR works  To ensure patients, carers and the public get feedback on how they have made a difference
 What does the work look like? How will we look to deliver on these priorities?
Refining what we do  Developing standards for public involvement  Developing effective measures and evaluation Developing new ideas to improve efficiency and effectiveness   Demonstrating how patients and the public have been part of decision-making Using feedback to improve and strengthen what we do 
Making it relevant   Sharing good practice of what works and what doesn’t  Generating high quality quantitative and qualitative evidence of the
value of public involvement and engagement
 Embracing opportunities and challenges to make PPI accessible such as digital Supporting patients and researchers with appropriate tools and training   Showing how people’s insight has made a difference
Reaching out to diverse partners and communities Supporting their adoption by the NIHR and other funders  Report what we do in an accessible way to key audiences and partners  Reaching into new communities underrepresented in our work  Communicating our plans and work in an accessible manner  National and local for feedback and evaluation that are accessible and easy to-use 
Relationships that support success Collaborations and partnerships that enable the priorities to be taken forward in a way that helps and assists colleagues across the NIHR

Note:

A delivery principle underlying the plan is that work will be delivered in an NIHR-wide fashion but that leadership on each priority will be provided by one or more NIHR Centres:

  • Standards: INVOLVE and Central Commissioning Facility
  • Impact/Getting Results: National Director with Central Commissioning Facility
  • Invention: Trainees Coordinating Centre with the Clinical Research Network
  • Voice: National Director
  • Feedback: Clinical Research Network