Sophie, Simon, Robyn and Jenny at iCAN Research and Advocacy Summit

Patient Research Ambassadors travel to Florida to promote young peoples involvement in research

Date: 31 July 2017

The NIHR’s Jennifer Preston and three young Patient Research Ambassadors took to the sky this month with one common goal; to ensure young people and families have a voice in the healthcare they receive. The team attended the International Children’s Advisory Network (iCAN) Research and Advocacy Summit: Providing children and families a voice in medicine, research and innovation.

Jenny wears several hats for the NIHR, she is Patient and Public Involvement Priority Lead for the NIHR Clinical Research Network, Project Manager for the NIHR Patient Research Ambassador Initiative and Patient and Public Involvement and Engagement Manager for the NIHR Alder Hey Clinical Research Facility in Liverpool. She attended this event as facilitator of Generation R, Liverpool’s Young Person’s Advisory Group, and co-founder of the European Young Person’s Advisory Group Network (eYPAGnet).

Young Patient Research Ambassadors Sophie Ainsworth, Simon Stones and Robyn Challinor have worked with Jenny on many research projects and together they presented some of their achievements at the Summit, Robyn said:

“The iCAN Summit 2017 has been a week filled with friendships, fun, new ideas, research activities and new connections. Taking part in sessions about industry standards, expectations and the chance for my voice to be heard has motivated me to be more involved in the coming year. Catching up with Young Person’s Advisory Groups from around the world only highlights the important work we do in the UK, and how others can learn from us. It is exciting to see what the next year will bring for iCAN, and I look forward to the iCAN Summit 2018 in Edinburgh!”

Sophie will be representing young people’s involvement in research at the NIHR INVOLVE at 21 Conference later this year.

Find out more about:

Follow the Patient Research Ambassador Initiative on Twitter
@NIHR_PRAI     #researchambassador

  • Summary:
    The NIHR’s Jennifer Preston and three young Patient Research Ambassadors took to the sky this month with one common goal; to ensure young people and families have a voice in the healthcare they receive. The team attended the International Children’s Advisory Network (iCAN) Research and Advocacy Summit: Providing children and families a voice in medicine, research and innovation.
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