Date: 12 October 2018
Since becoming research active in 2012, the Hospice has contributed to a number of regional, national and international studies and participants have told staff that they have found it a positive and rewarding experience.
The CRN (Clinical Research Network) East Midlands – the NIHR’s coordinating body across the region – has worked in partnership with the Hospice to give staff the skills and support needed to encourage patients receiving end of life care to participate in research. As a result, research at the Hospice has gone from strength to strength.
The experience has been positive for both patients and the Hospice and the CRN East Midlands is now working across the region to replicate the success of research at John Eastwood. A ‘how-to’ guide for hospices aimed at increasing participation in research will be released in the coming months.
Dr Alpna Chauhan, Research Lead and Consultant in Palliative Medicine at John Eastwood Hospice said:
“It’s really important that people receiving palliative care are offered the opportunity to take part in research. Since our hospice became research active, we have been able to use the experience of patients here in Nottinghamshire to help influence the future of care across the country.
“What’s inspirational is that even during such a difficult time, people want to use their experience to make a difference. By working with the CRN East Midlands to make research a vital part of what we do, we’ve been able to empower patients to help us improve our palliative care now and in the future.”
Lorna Brown, Clinical Research Nurse and staff nurse at John Eastwood Hospice said:
“A patient participated in several studies at the Hospice and I always remember her saying ‘if I can help with any type of research study here that will benefit future patients, please think of me!’ She was involved with three of our studies at the Hospice and has never been forgotten.”
Dr Andrew Wilcock, Co-Lead for Supportive and Palliative Care Research, CRN East Midlands said:
“We’ve been delighted to work with John Eastwood Hospice to help it develop as one of the top research hospices in the country. We know that conducting research in palliative care is challenging, and it is testament to the excellent relationships that hospice staff have developed with patients that so many are choosing to take part.
“The research carried out at John Eastwood is leading to patients receiving higher quality care and allowing us to learn more about the support that patients receiving end of life care need. We’re very grateful to all patients who have taken part in research and look forward to making our research relationship with John Eastwood even stronger.”
World Hospice and Palliative Care Day, which takes place on October 13th each year and is led by the international Worldwide Hospice Palliative Care Alliance, aims to raise awareness and understanding of people living with a life limiting disease and to raise funds to support and develop hospice and palliative care services around the world.
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