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Preparing primary and community care in the NHS for genomic research: A joint report by the NIHR CRN and RCGP


The NIHR Clinical Research Network (CRN) has published a joint paper in partnership with the Royal College of General Practitioners (RCGP) on preparing primary and community care NHS organisations for genomic research.

The report, led by Professor Philip Evans on behalf of the NIHR CRN National Primary Care Specialty Group and produced in collaboration with RCGP’s Genomics Champion Drs Hayward and Rafi - formed part of the Cluster C Emerging Technology and Innovation (ETI) programme, based in King’s College.

The new genomic revolution is predicted to impact on mainstream medicine and the heart of the NHS in the near future. The NIHR CRN has worked through its stratified medicine initiative to prepare the NHS for personalised medicine studies. However, it has become apparent that primary and community care may not be as prepared for the advent of genomic medicine studies as other parts of the NHS - in areas such as family history reporting, recording of genomic abnormalities through clinical data systems, or through the recording of detailed phenotypic traits.

Three key workstreams were identified as part of the programme of work and stakeholders in each workstream approached. The newly published report is the outcome of this collaborative project and contains recommendations from both organisations to promote genomic research in primary and community care.

Dr Philip Evans, NIHR CRN National Specialty Lead for Primary Care said: "In the light of the massive scientific advances being made within genomics, there is now a pressing need for primary care to undertake genomic studies. This report identifies the building blocks that are needed to facilitate effective recruitment of participants into genomics studies within the CRN."