Date: 20 March 2019
CRN South London has awarded a grant of over £2,500 to researchers aiming to redesign and develop the Cicely Saunders Institute (CSI) Public Involvement Forum.
The aim of the online forum is to enable those with experience of, or an interest in, palliative care and rehabilitation research to work together with CSI researchers on the design and delivery of research studies. The forum was set up in 2016 and has 90 registered users.
A public workshop was recently held to discuss how the online forum can be redeveloped to increase overall engagement. The group decided to focus on: improving user navigation; making it clearer what the forum is and how it should be used; as well as simplifying the overall language and design of the website.
Research Assistant and PhD student Lisa Jane Brighton chairs the forum’s Patient and Public Involvement (PPI) group. She said:
“We are really pleased to have been awarded this funding and are very grateful for the support our Local Clinical Research Network (LCRN) has shown for this project. The funding will allow us to take the next steps in improving the overall quality and reach of our PPI work.
“I was really happy with how the workshop went. Our participants demonstrated great teamwork, and we made some really positive progress in deciding on how to take the redesign of the forum forward.”
The morning session saw attendees brainstorm ideas on what features and design elements they felt would engage and empower users of the forum, while the afternoon session saw the group decide on what features to take forward as part of the redesign.
The next public workshop will be held in April or May to enable the group to review their progress in implementing the changes.
Lisa said the group is keen to ensure that the forum is relatable and user friendly for everyone who signs up.
People register to the forum by using an online form, which is reviewed by moderators to ensure accounts are genuine, before being approved. Once registered, users have access to all discussion threads, they can contribute through posts and start their own discussions.
CRN South London Patient and Public Involvement and Engagement (PPIE) Lead Robert Pleass said:
“The CSI Public Involvement Forum is a great tool in giving patients, their families and members of the public a real say in the design and delivery of research, and as a network we are more than happy to support this project.”
The forum was an award winner at last year’s NIHR South London Clinical Research Awards.
If you would like to find out more about the forum please click here.
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