Date: 05 April 2019
A survey conducted by the National Institute for Health Research (NIHR) Clinical Research Network (CRN) Wessex has seen local patients report having a positive experience of being involved in a research study.
The 2018/19 CRN Wessex patient research experience survey (PRES), which received 400 responses from ten NHS organisations in the Wessex region, showed that 96% of participants had a good experience of taking part in research. It also showed that 98% of research participants surveyed had all the information that they needed in relation to the study.
The survey, which was run for a second time in Wessex throughout October 2018, provided an opportunity for research participants to anonymously share their experiences of being involved in a study.
Many of those surveyed reported that the research staff supporting them were friendly and helpful and that they had a considerable amount of time to spend with them in order to explain the study and answer any questions.
The survey also highlighted that one of the key motivators for taking part in research was a desire to help others, with one participant commenting: “It’s good to know that this research could help future generations of patients.”
Understanding the experience of research participants is key for CRN Wessex, who will use the feedback to shape how future research is delivered.
Alongside its NHS partner organisations, CRN Wessex plans to conduct its 2019/20 patient research experience survey in October 2019. The survey is currently being designed by a working group, with representation from patients and research teams from across the region.
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