Young People’s Advisory Group (YPAG) for research

Young people in Kent, Surrey and Sussex are helping to shape health research which affects them

Date: 05 January 2018

A new Young People’s Advisory Group (YPAG) for research has been established in the Kent, Surrey and Sussex region for young people aged 8 to 18 years old.  

The YPAG was launched at the Royal Alexandra Children’s Hospital in Brighton on Saturday 25 November 2017 and is open to any young person who wants to make research better for themselves and others.   

Input provided by children and young people to doctors, nurses and therapists is valuable as it ultimately helps to improve the overall research experience for everyone. Members of this new group will soon be advising on, and expressing their views to all stages of research. This could include reviewing participant information sheets for readability, language, acceptability to young people, and overall comprehension.

It is also a fantastic opportunity for young people to meet new people and develop new skills such as presenting and communicating to a wider audience.

The YPAG  has been supported by the Rockinghorse charity who have provided a small grant to give Thank you vouchers to the young people for attending.  

People who attended enthused about the new group.

"It was fantastic & I'm really looking forward to the next meeting. I liked talking about the things that you can do to help children with asthma.” (Faye, nearly 8 years old)

" I loved it! I can't wait to look at some research now." (Hattie, aged 15 years old)

Children and young people are not the only ones to have an opportunity to become involved with research. Parents and carers who attended the launch event were told about the wish to set up a parallel Parent/Carer Advisory Group (PaC), which would be different from the YPAG.

The creation of the new YPAG was gratefully received by the parents and carers.

“Thank so much for involving us, it is inspiring to be part of this. I felt so positive attending, as did Christian. It is very empowering. Both of us would definitely like to come to the next meeting. Thank you so much for going to so much trouble with the allergy-friendly food - it was a real luxury for us to be catered for like that. Both Christian and I are so pleased to be part of this group and look forward to seeing you soon. I feel the event went exceptionally well: we received an incredible welcome and the children were really made to feel at ease - Christian was more than happy expressing his views. We will definitely be attending on 20th January…I am very interested in being part of the parents' group.” (Catherine, Mum).

"Hattie did not stop talking about the meeting and asking endless questions about research. It really fired her enthusiasm…We really enjoyed the meeting it was both fun and informative. It was great! We are both really excited to be part of the team and looking forward to attending the next meeting!" (Ruth, Mum).

The YPAG for Kent, Surrey and Sussex is a collaboration between:

  • NHS Trusts and Universities across Kent, Surrey and Sussex
  • INVOLVE
  • National Institute for Health Research (NIHR) Research Design Service (RDS) South East and the Clinical Research Network (CRN) for Kent, Surrey and Sussex
  • Members of the ‘Jaffa’ Panel (patient and public involvement lay research panel based at Brighton and Sussex University Hospitals Trust.

The organisers are grateful to the following for their help:

  • London YPAG (based at Great Ormond Street Hospital)
  • South West YPAG (based at University of Southampton)
  • Jenny Preston (Liverpool YPAG based at University of Liverpool)
  • INVOLVE who have provided ongoing support and advice

 

The next YPAG meeting is on Saturday 20 January, at 10.00am, at the Royal Alexandra Children’s Hospital, Eastern Road, Brighton BN2 5BE.

If you would like to attend please email: ypagkss@nihr.ac.uk or call research nurse Cathy Olden 01273 696955 extension 2514

If you are a researcher wishing to present your new research ideas to the YPAG please contact Professor Paul Seddon in the first instance.

 

  • Summary:
    A new Young People’s Advisory Group (YPAG) for research has been established in the Kent, Surrey and Sussex region for young people aged 8 to 18 years old. Input provided by children and young people to doctors, nurses and therapists is valuable as it ultimately helps to improve the overall research experience for everyone.
  • Include on homepage (one at a time):
  • Areas of the site this news is applicable to:
    Get involved
  • LCRN:
    Kent, Surrey and Sussex
  • Year of publication:
    2018
  • Specialty:
    Children
  • News filter:
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    • Patients and Public


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