Our Studies

Patient and Carer Involvement

Evaluation of Consumer Involvement in the NIHR Clinical Research Network: Children 2013-2014

This report presents findings from the evaluation of the National Institute for Health Research (NIHR) Clinical Research Network: Children Consumer Involvement Strategy 2013-2014. The evaluation was conducted by the National Children’s Bureau Research Centre.

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CRN Children: payments for participation report

A paper exploring young people's views on whether or not to offer payment (common in adults) to participate in research would influence their decision to take part in research.

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Other Resources

CRN Children - 2013 consumer strategy

The 2013 strategy for involving patients, carers and the public in children's clinical research.

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CRN: Children - CSG study submission form

Submit this form if you would like to become a member of a CRN: Children Clinical Studies Group

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CRN Children: YPAG launch paper

A document outlining the role of children and young people, produced at the launch of the CRN: Children's Young Persons' Advisory Group.

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CRN Children: Neonatal Network flyer 2014

A flyer outlining the role of the Neonatal Network in 2014.

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Children - 2011 consumer toolkit

A Toolkit for Consumer Representatives on CRN: Children Clinical Studies Groups.

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Neonatal Research Delivery Meeting Report

Meeting report from the National Neonatal Research Delivery Meeting, May 2014

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CRN: Children - patient information guidance

A guidance document for researchers developing patient information leaflets.

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Process summary for urgent public health risk research

In the event of an urgent public health outbreak (eg a pandemic) the Clinical Research Network must be able to rapidly set-up relevant research studies and ensure that these studies are successfully conducted so that their findings can inform the on-going care of patients during the outbreak. This document sumarises the Network's response process.

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