Enabling people with aphasia to participate in research: resources for stroke researchers

One third of patients have communication problems after a stroke, this is known as aphasia. People who have aphasia are often excluded from participating in research studies due to the difficulties of recruiting patients into studies with this condition. Patients, carers and researchers have expressed a wish for studies to try to include more people with communication difficulties.

NIHR Clinical Research Network Stroke has worked with people with aphasia and researchers to collate existing resources and develop new materials to help researchers to enable people with aphasia to participate. These resources are freely available.

The full resource pack is available below, as well other useful resources.

We hope that researchers find the resources useful.

The full resource pack

Phrases and matching images to assist with developing documents for people with aphasia

Aphasia friendly templates to assist researchers to create study documents e.g. study information sheets, consent forms, study pro formas, questionnaires and appointment letters

Stroke Association: Get involved with research

Working with the Stroke Association, we have produced this booklet for people with aphasia to explain what a clinical trial involves and what it is like to take part.