Now, members of the public are also getting involved in advising professionals about what research should be funded and helping to design and do research studies. Some members of the public become researchers themselves. This is Public Involvement in Research, sometimes called PCPIE (Patient Carer Public Involvement and Engagement) in research for short.
The term ‘public’ includes:
Public involvement in research means that research is being done ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them.
What the public can do in health research includes, for example:
There is a national PCPIE initiative, the Patient Research Ambassador Initiative, that all CRNs, including ours, participate in and support. The purpose is to promote PCPIE in research across England and Wales. A Patient Research Ambassador (PRA) is someone who promotes health research from a patient point of view. They could be a patient, service user, carer or lay person who is enthusiastic about health research and willing to communicate that to other patients and public as well as healthcare professionals. For more information and to register your interest in becoming a PRA in the Yorkshire and Humber region, please contact email@example.com
The PCPIE team supports an Annual Gathering for PRAs in the region. To read a summary of the latest by attendee Kirsten Thompson, go here.
Here at CRN Yorkshire and Humber we have a small team to help both the public and professionals understand, carry out and promote PCPIE in research. The team is:
Ways in which we can help include:
What is a clinical trial?
Clinical trials are research studies involving patients, which compare a new or different type of treatment with the best treatment currently available (if there is one). Some clinical trials look at possible ways to prevent illnesses, for example by testing new vaccines.
How can I get involved?
Dementia is one of the biggest challenges we face today. The number of people with Alzheimer's disease, vascular dementia and other types of dementia, is set to double over the next 30 years.
Research offers hope. It is only through research that we can understand what causes the disease, develop effective treatments, improve care and hopefully one day find a cure.
For queries relating to Join Dementia Research studies in the Yorkshire and Humber region, email firstname.lastname@example.org