The PPI Reference Group

The PPI reference group advises NETSCC on the strategic development of effective ways of working at every stage of the research management process, to support the implementation of the NETSCC PPI framework and business plan. 

The reference group is co-chaired by Jon Cole, NETSCC’s Assistant Director, Public Involvement and External Engagement  and Paul Andersen. 

The six public members of the PPI reference group are all experienced and skilled in varying aspects of PPI in health and social care research.

Paul Andersen (Co-Chair)

  • Public member of Ministry of Defence Research Ethics Committee and on the PULSE Ox Trial, Trial Steering Committee (TSC).  Previous public member of the Department of Health, Policy Research Programme funding panel,  NETSCC PPI Reference Group and  NHS Research Ethics Committee, (Isle of Wight and Portsmouth / South Central) 
  • Patient and the experience of caring for family member with terminal illness
  • Public contributor with the Health Research Authority
  • Public reviewer with NIHR for the following research programmes: Health Services and Delivery Research; Health Technology Assessment; Public Health Research 
  • Experience in public understanding of science as broadcast journalist and communications for national sight loss charity

Jennifer Bostock

  • Patient with long term genetic condition & carer
  • Former NIHR panel member: RfPB (Research for Patient Benefit); PGfAR (Programme Grants for Applied Research); i4i;( Invention for Innovation) PHR (Public Health Research) PRU (Policy Research Unit); PostDoc Fellowship Interview Panel; Current: HS&DR (Health Service & Delivery Research) Board & Peer Reviewer
  • Vice Chair - Cam & St Giles NHS Research Ethics Committee; Member - Marie Stopes & Save the Children RECs (Research Ethics Committees) & Ethics Lead RDS
  • Lay member - NHS England IFR (independent funding review); CCG (Clinical Commissioning Group) IFR; SPHR (School of Public Health) Board; CEDAR (Centre of Exercise and Diet Research)/GDAR (Global Diet and Activity Research) (Cam Uni); QORU (Quality Outcomes Research Unit) PIG (Public Implementation Group); Cancer Research UK (EDP) (Early Diagnosis Panel)
  • Chair: MH (Mental Health) Act Appeals Panel; SPHR PPI Panel; UsPex (Understanding Patient Experience data for service improvement) Lay Panel (Uni Oxford); RDS (Research Design Service) London PPI panel; QMU (Queen Mary University) Polypharmacy Expert Group

Eleni Chambers 

  • Member of INVOLVE National Advisory Group and Shaping Our Lives National User Group
  • Member of Sheffield CCGs Patient Engagement, Experience and Equality Committee and other local PPI groups in health and social care service delivery and research
  • Thirty years experience in involvement and research, passionate about involvement, works freelance for a variety of organisations

Jon Cole (Co-Chair)

  • Assistant Director for Communications, PPI and External Engagement
  • Experienced NIHR manager having also worked in the areas of journal production, research prioritisation, clinical trials units and systematic reviews
  • Former Web Marketing Manager for the University of Southampton

Debby Lennard  

  • Lay member of Research for Patients Benefit board and the School for Social Care board
  • Involvement representative and other roles for Cancer Research UK
  • PPI steering group member and/or  co-applicant on research projects
  • Programme Manager for a Community of Interest Company providing a digital intervention to support self management for people with Type 2 diabetes 

Tess McManus

  • 20 years working for organisations "of and for" disabled people
  • Experienced public contributor on NICE and NIHR committees
  • Worked to support the development and delivery of accessible services to disabled people across social care and health
  • Public member for NIHR, NICE and PHE on disability/access and inclusion related topics
  • Parent and Carer

Linda Parkinson Hardman

  • CEO of The Hysterectomy Association
  • Specialist committee member for NICE (National Institute for Health and Care Excellence) Menopause Quality Standard
  • Experienced women’s health researcher and author
  • Experienced public reviewer of research applications
  • Fellow of the Royal Society of Arts
  • Member of the Institute of Leadership and Management
  • Member of the Chartered Institute of Library and Information Professionals

Jane Putsey

  • Experienced public contributor on NICE and NIHR committees
  • Cared for parents at end of life and subsequently volunteered at local hospice
  • Public reviewer for NIHR applications
  • Grassroots volunteer supporting breastfeeding mums for many years, leading on to work to improve standards of care for infant feeding.  Now volunteers for Home Start.
  • Community Advisor for the Scottish Healthcare Associated Infection Prevention Institution

The other organisational members of the reference group are:

Gary Hickey (INVOLVE)

  • Senior Public Involvement Manager at INVOLVE
  • Board member at Healthwatch Croydon
  • Experienced researcher, project manager, trainer and lecturer in patient and public involvement
  • Helped establish the Centre for Public Engagement at Kingston University

Doreen Tembo

  • NETSCC Senior Research Manager, PPI
  • Former research methods and PPI consultant with the NIHR Research Design Services (RDS), former Chair of the National RDS Public Involvement Community
  • Researcher in public health, health services and patient experience of health and healthcare
  • 2018

    MeetingDocuments
    April Minutes 
    December Minutes
  • 2017

    MeetingDocuments
    December Minutes
    March Minutes 
  • 2016

    MeetingDocuments
    December Minutes 
    October Minutes 
    June Minutes 
    April Minutes