Research Participant Experience

In order to understand the experience of patients taking part in clinical research, the NIHR Clinical Research Network has worked on ways to collect and understand patient feedback. During 2018/19 a patient survey was carried out by our Local Clinical Research Networks across England and core feedback was collated and analysed nationally.

Improving the health and wealth of the nation through research

PRES Key Question

Below are some quotes from our participants

97% more participants took part this year

Thank you to everyone who took part

Man and doctor

"The staff were so friendly, knowledgeable and supportive that I was very sorry when the study came to an end."  


"I believe taking part in research gives medical professionals and patients a better understanding of health conditions and how to improve treatment."

Elderly lady and nurse

"All the staff I came into contact with were friendly, professional and approachable. Nothing was a problem."  



The patient research experience cycle

We are committed to using patient insight gathered from this survey to ensure we continuously improve our research practice. Based on survey feedback, our checklist is designed to inform patient and public involvement and engagement in research design and delivery.

research participant experience survey

Click here to read the Research Participant Experience Survey 2018/19