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Partnering with patients, service users, carers and communities

Discover the ways we work with with the public to ensure the perspectives and experiences of those affected help to shape research.

Making a difference

Parents of children with heart conditons and other members of the public co-developed content for a website that explains the complex and sensitive topics of children's heart surgery and survival rates. Their involvement has helped to make data more accessible and understandable to a wider audience. 

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Be Part of Research

Information for people who want to take part in UK health and social care research. It covers what research is, what taking part might involve and links to volunteer opportunities.

Join Dementia Research

A national service for members of the public to register to take part in dementia research. Registrants are contacted by a researcher when an appropriate study becomes available.

Learning for Involvement

Learning and development resources about public involvement in health and social care research. The website contains links to training, guidance, videos, articles and blogs.

People in Research

A service to match patients and the public with opportunities to work with researchers and be involved in shaping studies. Researchers can post opportunities and members of the public can browse these and apply to get involved. 

Research Champions

Volunteers who encourage people to take part in health and care research. They also help researchers learn more about the experiences of those participating in research.

UK Standards for public involvement

Guidance on best practice for public involvement in health and social care research. The standards are a collaboartive UK initiative aiming improve the quality and consistency of public involvement in research.