Date and Location
Friday 24 March 2023, held virtually via Zoom
In attendance
Committee Members
- Professor Karen Bloor (Chair), University of York, Health Sciences
- Professor Michael Robling, (Deputy Chair), Cardiff University, South East Wales Trials Unit, Department of
- Primary Care & Public Health
- Professor Mark Petticrew, London School of Hygiene and Tropical Medicine, Faculty of Public Health and Policy
- Professor Heather Brown, University of Lancaster, Division of Health Research
- Professor Ellen Nolte, London School of Hygiene and Tropical Medicine, Department of Health Services Research and Policy
- Dr Peter Sivey, University of York, Centre for Health Economics
- Professor Allan Wailoo, University of Sheffield, School of Health and Related Research
- Mr Simon Walker, University of York, Centre for Health Economics
- Professor Cecile Knai, London School of Hygiene and Tropical Medicine, Department of Health Services Research and Policy
- Mrs Liz Sinker, PPI Representative
- Mr Justin Greenwood, PPI Representative
- Mrs Una Rennard, PPI Representative
Subject Experts for Call 14:
- Dr Kate Downes, Cambridge University Hospitals NHS Foundation Trust, East Genomic Laboratory Hub
- Dr Michael Absoud, Guy's and St Thomas' NHS Foundation Trust, Children’s Neurodisability
- Dr Jamal Nasir, University of Northampton, Department of Life Sciences
- Dr Bridget Bax, St. George's, University of London
- Dr William Evans, University of Nottingham, NIHR School for Primary Care Research
Subject Experts for Call 4:
- Dr Lisa Trigg, Social Care Wales, Research, Data and Intelligence
- Dr Wenjing Zhang, University of Kent, Centre for Health Services Studies
- Dr Lavinia Bertini, Brighton and Sussex Medical School
- Dr Elizabeth Croot, University of Sheffield, ScHARR
Subject Experts for Call 11:
- Dr Siobhan O'Dwyer, University of Birmingham, Health Services Management Centre
- Dr Stefanie Ettelt, Prognos AG
- Dr Dan Burrows, Cardiff University, School of Social Sciences
Subject Experts for Call 3:
- Dr James Duffy, South London and Maudsley NHS Foundation Trust, START Homeless Outreach and South London Partnership Complex Care
- Dr Anna Tickle, University of Nottingham, Division of Psychiatry and Applied Psychology
- Dr Deborah Quilgars, University of York, Social Policy and Social Work
Department of Health and Social Care Liaison Officers
- Ms Rachel Conner, Department of Health and Social Care
- Miss Josephine Regan, Department of Health and Social Care
- Miss Imogen Davies, Department of Health and Social Care
- Miss Leanne Dew, Department of Health and Social Care
- Miss Sophie Kay, Department of Health and Social Care
- Dr John Wilkinson, Department of Health and Social Care
Policy Representatives
- Kath Bainbridge, Department of Health and Social Care
- Megan Hyden, Department of Health and Social Care
- Laura Bates, Department of Health and Social Care
- Oliver Barrett, Department of Health and Social Care
- Rebecca Story, Department of Health and Social Care
- Shiva Sapra, Department of Health and Social Care
NIHRCC
- Zak Tait, Research Officer, Operations
- Daniela Stremtan, Research Officer, Operations
- Marc Browne, Research Officer, Operations
- Jojo Leppink, Operations Manager, Operations
- Emily Allen, Senior Programme Manager, Policy Research Programme
- Nick Chandler, Senior Programme Manager, Policy Research Programme
- Chiara Gasparani, Senior Programme Manager, Policy Research Programme
- Jaskaren Brainch, Programme Manager, Policy Research Programme
- Olena Myronova, Programme Manager, Policy Research Programme
- Mike Nelson, Programme Manager, Policy Research Programme
- Mario Moroso, Assistant Director, Policy Research Programme
- Bronwyn Mathews, Research Manager, Global Health
- Delwen Samuel, Senior Governance, Performance and Improvement Manager
- Priya Viswanathan, Senior Research Collaboration Manager
- Rozie Newman, Governance & Risk Manager, Governance
Observers
- Dr Louise Hayes, Newcastle University, Population Health Sciences Institute
Call 14: Research to support evidence building and the evaluation of the UK Rare Diseases Framework 2021- 2026
NIHR205965: EQUALISE : EQUitable And effective care coordination for people LIving with rare diseaSEs
Conflicts: Professor Heather Brown, Professor Ellen Nolte & Dr William Evens
Outcome: Invited to Stage 2
Conflicted individuals were not present for the duration of the discussion
NIHR205978: Research to support evidence building and the evaluation of the UK Rare Diseases Framework 2021-2026
Conflicts: Professor Mark Petticrew & Professor Heather Brown
Outcome: Invited to Stage 2
Conflicted individuals were not present for the duration of the discussion
NIHR205983: RareCare: Evaluation of England’s Rare Diseases Action plans
Conflicts: Professor Michael Robling
Outcome: Invited to Stage 2
Conflicted individuals were not present for the duration of the discussion
NIHR205991: Research to support evidence building and the evaluation of the UK Rare Diseases Framework with respect to care coordination
Conflicts: Professor Heather Brown & Professor Ellen Nolte
Outcome: Invited to Stage 2
Conflicted individuals were not present for the duration of the discussion
NIHR205996: Building the evidence base and evaluating diagnostic and clinical care pathways for rare bone disorders (RBD)
Conflicts: Professor Allan Wailoo
Outcome: Reject
Conflicted individuals were not present for the duration of the discussion
NIHR206011: Coordinated Access, Response, and Experience of care in Rare Diseases (CARE-RD)
Conflicts: Dr Michael Absoud
Outcome: Reject
Conflicted individuals were not present for the duration of the discussion
Call 4: Evaluation of the Impact of the Adult Social Care Provider Information Provisions
NIHR205971: Evaluation of the Impact of the Adult Social Care Provider Information Provisions
Conflicts: Professor Karen Bloor, Professor Heather Brown, Dr Peter Sivey & Mr Simon Walker
Outcome: Reject
Conflicted individuals were not present for the duration of the discussion
NIHR205998: Evaluation of the Impact of the Adult Social Care Provider Information Provisions
Conflicts: Professor Karen Bloor, Professor Heather Brown, Dr Peter Sivey & Mr Simon Walker
Outcome: Recommended for conditional funding (single stage committee assessment)
Conflicted individuals were not present for the duration of the discussion
NIHR206009: Evaluation of the Impact of the Adult Social Care Provider Information Provisions
Conflicts: Professor Karen Bloor, Professor Heather Brown, Dr Peter Sivey & Mr Simon Walker
Outcome: Reject
Conflicted individuals were not present for the duration of the discussion
Call 11: An evaluation of support for unpaid carers funded through the Better Care Fund
NIHR205961: An evaluation of support for unpaid carers funded through the Better Care Fund
Conflicts: Professor Karen Bloor, Dr Peter Sivey & Mr Simon Walker
Outcome: Recommended for conditional funding (single stage committee assessment)
Conflicted individuals were not present for the duration of the discussion
NIHR206010: An evaluation of support for unpaid carers funded through the Better Care Fund
Conflicts: Professor Karen Bloor, Dr Peter Sivey & Mr Simon Walker
Outcome: Reject
Conflicted individuals were not present for the duration of the discussion
Call 3: Understanding the Missing Links: Health and Social Care for People Experiencing Homelessness
NIHR205985: Evaluation of integrated care for persons experiencing homelessness in England
Conflicts: Professor Karen Bloor, Professor Mark Petticrew, Professor Heather Brown & Professor Cecile Knai
Outcome: Invited to Stage 2
Conflicted individuals were not present for the duration of the discussion
NIHR205986: Integrated Health and Social Care for People Experiencing Homelessness
Conflicts: Professor Karen Bloor, Professor Mark Petticrew, Professor Heather Brown & Professor Cecile Knai
Outcome: Reject
Conflicted individuals were not present for the duration of the discussion
NIHR205997: Life (and death) on the streets. Understanding and addressing barriers to integrated care and housing.
Conflicts: Professor Karen Bloor, Professor Mark Petticrew, Professor Heather Brown & Professor Cecile Knai
Outcome: Reject
Conflicted individuals were not present for the duration of the discussion
NIHR206006: Understanding the Missing Links: Integrated Health and Social Care for People Experiencing Homelessness
Conflicts: Professor Karen Bloor, Professor Mark Petticrew, Professor Heather Brown & Professor Cecile Knai
Outcome: Invited to Stage 2
Conflicted individuals were not present for the duration of the discussion