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PPI (Patient and Public Involvement) resources for applicants to NIHR research programmes

 

Contents

Resources for PPI

Standards for Public Involvement

The UK Standards for Public Involvement in Research will help guide you to improve the quality and consistency of the public involvement in your research: https://sites.google.com/nihr.ac.uk/pi-standards/home

Guidance for researchers on PPI

INVOLVE have developed guidance for researchers on how patients and the public can be involved: http://www.invo.org.uk/posttypepublication/involve-briefing-notes-for-researchers/

Payment and recognition for PPI

INVOLVE also provide guidance on reward and payment for involvement: http://www.invo.org.uk/resource-centre/payment-and-recognition-for-public-involvement/

Co-production

Also INVOLVE developed guidance on co-producing a research project: https://www.invo.org.uk/posttypepublication/guidance-on-co-producing-a-research-project/

Providing feedback to public contributors

Useful, practical and evidence-based guidance is available on providing effective two-way feedback between researchers and public contributors: https://www.clahrc-eoe.nihr.ac.uk/wp-content/uploads/2016/05/Guidance-for-Researchers-PPI-Feedback_2018.pdf

Online Public Reviewing Course

You may find the following online interactive course useful when considering how to design the PPI in your project: www.nihr.ac.uk/involve-public-reviewing-course. It will describe how patient and public reviewers and public committee members assess research plans.

Resources for evaluating the impact and reporting of PPI

In Stage 2 applications, you will be asked to describe how you will record and evaluate the impact PPI has on the research. The level of evaluation should be proportionate to the level and complexity of the proposed PPI activities. The following resources provide different frameworks for assessing impact and reporting PPI:

Evaluating public involvement in research

Guidance on evaluating PPI in research: http://www.phwe.org.uk/wp-content/uploads/Guidance-on-evaluating-Public-Involvement-in-research.pdf

Assessing impact of PPI in research

The Public Involvement Impact Assessment Framework (PiiAF) has been produced to help researchers assess the impacts of involving public members in their research: http://piiaf.org.uk/

Reporting of PPI

GRIPP2 reporting checklists (tools to improve reporting of PPI in research): https://www.bmj.com/content/358/bmj.j3453